Nearly 15 years after the death of Patrick Swayze, Lisa Niemi continues to transform personal loss into ongoing advocacy, remaining deeply involved in the fight against pancreatic cancer.
Following Swayze’s death in 2009 after a 22-month battle with the disease, Niemi says she found purpose in continuing the work he began, even as she navigated her own grief. Speaking to Us Weekly, she described the diagnosis as an “instant nightmare,” but said stepping forward publicly became a way to honor his determination.
Turning Grief Into Action
Niemi’s involvement began when the Pancreatic Cancer Action Network approached her about speaking at an event. Though initially uncertain about taking on such a visible role, she ultimately felt compelled to share their experience.
“It was really tough on me at that time, but I have to say, it gave me a way to keep his fight going, because he fought like hell to be here, and just because he was gone didn’t mean the fight was over,” she told Us Weekly.
What started as a personal step forward has since grown into a sustained effort to support research, raise awareness and assist those facing the disease. Despite concerns from some about the low survival rate associated with pancreatic cancer, Niemi has remained committed to pushing for progress.
“Progress has to be made, and we have to keep on pushing forward,” she said, emphasizing the need for continued attention and funding.
Supporting Patients and Families
Central to her advocacy is the work of PanCAN, which Niemi described as a “one-stop shop” for those affected by pancreatic cancer. The organization offers patient services, including individualized support, information about treatment options and guidance toward clinical trials.
“They offer patient services, so if you’ve been diagnosed, you can contact them and get one-on-one support information, directions to clinical trial doctors, and what you can do in your area,” she explained.
She also highlighted the importance of funding, noting that research and federal support are essential in advancing treatment options. According to Niemi, meaningful progress against the disease relies on sustained investment and advocacy efforts.
PanCAN’s annual Purple Stride fundraiser has become a key part of that mission. Held in dozens of communities, the event has raised more than $17.6 million to date. This year’s walk is scheduled for April 25.
“Everybody’s wearing purple,” Niemi said of the event. “These people show up with such energy and joy and love… they’re there representing all the people who are fighting this disease and all the people who they’ve lost.”
A Message for Caregivers
Beyond patients, Niemi has also focused on the challenges faced by caregivers — a role she experienced firsthand. Looking back, she acknowledged that she often put her own needs aside while caring for Swayze.
“I used to go to TJ Maxx if I was able to take a break,” she recalled. “I’d go two hours searching for the perfect T-shirt… that was my break, and it worked, but I didn’t do enough of it.”
She now emphasizes the importance of self-care, noting that neglecting her own well-being had lasting effects. “I kept everything down outside of me because I was being strong for him,” she said, calling that period “the biggest battle” of her life.
Moving Forward While Honoring the Past
Today, Niemi continues to carry Swayze’s memory while also embracing a new chapter in her life. She has found a balance between honoring the past and building a future, which includes her marriage to Albert DePrisco and a quieter life on a farm.
Even as her personal life evolves, her commitment to advocacy remains unchanged — ensuring that the fight against pancreatic cancer continues in the years after Swayze’s passing.
