The parents of three-year-old Ryleigh Hillcoat-Bee are pursuing legal action after what they describe as missed opportunities by hospital staff to diagnose their daughter’s rare medical condition.
Ryleigh was brought to Blackpool Victoria Hospital in August 2021 with troubling symptoms, including lethargy and weakness. Although tests revealed elevated potassium and creatine kinase levels—potential indicators of the muscle disorder rhabdomyolysis.
She was discharged, with doctors reportedly reassuring her parents it was likely “a one-off” illness. Tragically, Ryleigh’s condition rapidly deteriorated, and she passed away on November 8, 2021, after suffering cardiac arrest.
“Missed Opportunities” in Hospital Care
At a recent inquest, Area Coroner Alan Wilson highlighted several “missed opportunities” for hospital staff to investigate Ryleigh’s symptoms more thoroughly. Her parents reported disturbing signs, including dark-colored urine, yet hospital staff dismissed these concerns.
A few days after her death, the hospital even called to arrange follow-up tests, compounding her parents’ grief and frustration. The inquest also revealed that specialists from Leeds had advised hospital staff to consult a neuromuscular expert, a recommendation that was reportedly overlooked.
Rare Lipin 1 Deficiency Uncovered
Months after her passing, further tests revealed Ryleigh had an extremely rare condition known as Lipin 1 deficiency, which predisposes individuals to rhabdomyolysis.
In those with this deficiency, common infections can trigger muscle breakdown, releasing proteins and electrolytes into the bloodstream and potentially causing life-threatening complications.
Medical negligence solicitor Diane Rostron, representing Ryleigh’s parents, believes the hospital failed to provide crucial information that could have guided her parents in managing her condition and preventing further deterioration.
Family’s Heartbreak and Determination for Change
Ryleigh’s parents, Andrew Hillcoat and Caroline Bee, have described the inquest process as long and painful, but they are determined to seek accountability. They believe that, with proper care and guidance, their daughter’s life might have been saved.
Chris Barben, Executive Medical Director at Blackpool Teaching Hospitals NHS Foundation Trust, extended condolences to Ryleigh’s family, emphasizing the hospital’s commitment to learning from this tragic incident.
Throughout their ordeal, Ryleigh’s family has received support from The Compassionate Friends charity, which helps families grieving the loss of a child. To honor Ryleigh’s memory, Caroline’s sister-in-law, Katie Hobbs, ran the Royal Parks Half Marathon, raising over £3,000 for the charity.
